I’m Kate Dewhirst.

I’m a lawyer who writes about legal issues affecting healthcare in Canada

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Democratizing health information

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That sounds lofty doesn’t it?

There is an important movement afoot in health care where recipients of health care services get better, faster, and more consistent access to their own health information.  The effect is democratizing health information.

When we give patients instant access to their information, they are better able to navigate their health journey. We change the power imbalance and we give patients information to make informed choices and expedite their care.

Timely access to information is one of the key ways teams can demonstrate respect for their patients.

Examples of democratizing health information include:

  • LifeLabs now allows individuals to register to receive their own laboratory test results directly so they do not have to wait to hear from their health care provider
  • Patient portals allow individuals to register to an online environment for parts of their health record where they can see their upcoming appointments and share their scans, reports, test results and other health information with whomever they choose
  • Individuals may use their own mobile devices to upload their health records to be able to share their information with their health care providers

This movement is wonderful – and not without negative impact.

With increased knowledge and access to information comes confusion. When individuals get their test results first, if they do not know how to interpret those results they can be distressed by the results without the benefit of in the moment explanation from a care provider.  This negative impact can be mitigated though by patient education and engagement.

In the interim phase as sharing information directly with patients becomes more prevalent there will be growing pains.  But I promise, the growth will be worth it.

I help Privacy Officers across the health sector and across the province of Ontario with their health privacy compliance.  If you have questions about this – give me a call!

If you want to register for my free upcoming Ask Me Anything Privacy Officer webinars – you can sign up for one or all of them by clicking on the dates below:

January 9 – 12 noon

February 6 – 9am

March 6 – 4pm

If you are ready to join my Privacy Officer training sign up here for course starting April 2019 or sign up for the next Advanced Privacy Officer training on June 18, 2019.


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Some of Kate’s recent and upcoming events

Team Privacy Training Events

November 14, 16, 29 & 30 and December 3, 11, 12, 13 & 19

For Primary Care clinics and FHTs

Kate trains health professionals from many more primary care organizations how being privacy-respectful can improve therapeutic relationships. more details...

Building healthy habits

November 26, 2018

Legal coaching at a Toronto law firm.

A private coaching session

Primary care webinar: Shared services agreements

December 6, 2018, 12 noon

Part of Kate’s monthly webinar series.

Pitfalls that primary care organizations need to look out for when agreeing to provide care in collaboration with other healthcare organizations.

Full details of the 2019 webinar series and registration here.

Privacy Officer training

April 30 through June 4, 2019

Kate’s specialist training course for Privacy Officers in health organizations.

Open to all health Privacy Officers, as well as those hoping to become Privacy Officers. Full details and registration for Privacy Officer training next spring here...

Advanced Privacy Officer training

June 18, 2019

For experienced Privacy Officers within healthcare organisations.

This one day training course focuses on how to handle difficult privacy situations using real-life (but anonymized) case studies and role-play. Full details and registration here...

Free healthcare privacy webinar - ask me anything!

December 5, 2018 4-5pm and January 9, 2019 12noon-1pm

Free webinar - advance registration needed

Whether you're an experience privacy officer or new in the field, pick Kate’s brain for free for an hour, in this live webinar. No charge, but you’ll need to register in advance.

Kate Dewhirst Health Law

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